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Patient Stories

Results from treatment with KALBITOR may vary.  Talk to your doctor to find out if KALBITOR is right for you.  Make sure to read KALBITOR Important Safety Information regarding severe allergic reactions and review the Medication Guide before getting treatment with KALBITOR.

Danielle's Story

Danielle, 41, is a stay-at-home mom in Seattle, WA, where she lives with her five-year-old daughter and husband. Danielle began to have severe hereditary angioedema (HAE) attacks when she was pregnant and was diagnosed with HAE just before her 40th birthday. 

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Greg's Story

Because he has no known family members with hereditary angioedema (HAE), Greg’s diagnosis at age 18 came as a complete surprise. “I’m the lucky one,” he says wryly.

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Jael's Story

Jael’s most memorable hereditary angioedema (HAE) attack was her first one, about 20 years ago, when she awoke to find her lip completely swollen.

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Joan's Story

Just 10 days or so after her local hospital stocked its first supply of KALBITOR for her, she awoke on a Saturday morning with an acute attack of hereditary angioedema (HAE).

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Marina's Story

At age 16, Marina has become a teacher of sorts, educating the adults around her about hereditary angioedema (HAE) and how her HAE attacks should be managed.

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Important Safety Information

KALBITOR® (ecallantide) for subcutaneous use should only be given by a doctor or nurse with appropriate medical support to treat serious allergic reactions and your hereditary angioedema. You should read the Medication Guide before you start receiving KALBITOR and before each treatment.

Serious allergic reactions may happen in some people who receive KALBITOR. These allergic reactions can be life-threatening and usually happen within 1 hour after receiving KALBITOR.

Symptoms of a serious allergic reaction to KALBITOR can be similar to the symptoms of hereditary angioedema, the condition that you are being treated for. Your doctor or nurse should watch you for any signs of a serious allergic reaction after treatment with KALBITOR. Tell your doctor or nurse right away if you have any of these symptoms of a serious allergic reaction during or after treatment with KALBITOR:

  • wheezing, shortness of breath, cough, chest tightness, or trouble breathing
  • dizziness, fainting, fast or weak heartbeat, or feeling nervous
  • reddening of the face, itching, hives, or feeling warm
  • swelling of the throat or tongue, throat tightness, hoarse voice, or trouble swallowing
  • runny nose or sneezing

Do not receive KALBITOR if you are allergic to KALBITOR. Before receiving KALBITOR, tell your doctor if you have ever had an allergic reaction to KALBITOR.

Before receiving KALBITOR, tell your doctor about all of your health conditions, including any allergies you may have, whether you are pregnant, plan to become pregnant, or are breast feeding or plan to breast feed. It is not known if KALBITOR will harm your unborn baby or if KALBITOR passes into your breast milk.

Common side effects of KALBITOR include headache, nausea, diarrhea, fever, injection site reactions, such as redness, rash, swelling, itching, or bruising, and stuffy nose.

Talk to your doctor for more information and if you have any questions about your treatment.

Please see Full Prescribing Information, including Boxed Warning and Medication Guide.

You are encouraged to report negative side effects of prescription drugs to the FDA. Visit www.fda.gov/medwatch, or call 1-800-FDA-1088.